Fighting for Justice: Why I Became a Patient Advocate

Fighting for Justice: Why I Became a Patient Advocate

Bil
Published on: 03/06/2025

My name is Bil Schmidtknecht, and I never planned to become a patient advocate. I was a husband, a father, and like many Americans—just trying to make it through life. But everything changed on January 21, 2024, when my 22-year-old son, Cole, died from a completely preventable asthma attack. He died not because he didn’t know he needed his medication, and not because the treatment didn’t exist. He died because the price of his daily inhaler suddenly jumped from around $66 to over $500—without warning. He couldn’t afford it. He chose to pay rent. And five days later, he was gone. Since that day, I’ve made it my mission to shine a spotlight on the broken parts of our healthcare system—especially the role of Pharmacy Benefit Managers (PBMs) who manipulate drug formularies, dictate prices, and block access to essential medications in the name of profit. Through PatientProtector.us, I work to amplify the stories of patients and families who’ve been harmed by these hidden healthcare middlemen. We educate, advocate, and push for bold reforms—at the state and federal levels. On social media, I share real stories, updates, and hard truths. You can follow and support this fight at @AngryDadWI and angrydadwi.start.page. If you’ve experienced a healthcare failure—whether due to high drug costs, insurance denials, or pharmacy closures—I invite you to share your story at PatientProtector.us. Your voice could save lives. This isn’t just about my son anymore. This is about all of us. Join the movement. Protect Patients. Not Profits.

Cole
The High Cost of Medicine: A Tragic Loss and a Call for Reform

The High Cost of Medicine: A Tragic Loss and a Call for Reform

Bil
Published on: 03/06/2025

In January 2024, 22-year-old Cole Schmidtknecht of Appleton, Wisconsin, lost his life to a preventable asthma attack—triggered not by a lack of awareness or medical neglect, but by the unaffordable cost of a medication he had depended on for years. Cole’s daily inhaler, Advair Diskus, had always been accessible—typically costing between $35 and $66. But when he went to refill his prescription, he was blindsided by a new out-of-pocket price: $539.19. Unbeknownst to him, the pharmacy benefit manager (PBM) OptumRx had removed it from their formulary without providing the legally required 30-day notice. Faced with an impossible decision, Cole chose to pay rent instead of buying the medication that helped him breathe. Five days later, he suffered a fatal asthma attack. His family has since filed a lawsuit against OptumRx and Walgreens, alleging wrongful death, negligence, and violations of state law. Cole’s death isn’t just a personal tragedy—it’s a national outrage. It exposes how PBM practices, hidden costs, and broken communication can result in life-or-death consequences for everyday Americans. If you or someone you love has faced a similar healthcare failure—whether it's due to high drug prices, insurance denials, or pharmacy closures—we want to hear from you. Visit PatientProtector.us to share your story. Your voice matters. Every experience helps us fight for transparency, fairness, and life-saving reform. Together, we can demand a system that protects patients—not profits.

Cole
WV Office of Insurance Commisioners Releases PBM/Drug Rebate Report

WV Office of Insurance Commisioners Releases PBM/Drug Rebate Report

Bil
Published on: 04/03/2025

PBM rebates thrive in secrecy, but transparency unlocks fairness and puts patients first.

Cole
US FTC finds major pharmacy benefit managers inflated drug prices for $7.3 billion gain

US FTC finds major pharmacy benefit managers inflated drug prices for $7.3 billion gain

Bil
Published on: 24/02/2025

The nation's three largest pharmacy benefit managers have significantly marked up the prices of certain medicines, including for heart disease, cancer and HIV, at their affiliated pharmacies, the U.S. Federal Trade Commission said on Tuesday.

Cole